#tubieweek – The Spoonie Mummy Reviews – INGA Wellbeing

Good morning and welcome to another #tubieweek post.  Today I want to introduce you all to INGA Wellbeing.

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The Problem With What To Wear In Hospital

Anybody who has spent time in hospital will know the daily nightmare that is trying to be comfortable in what you are wearing.  Finding something that keeps you at a comfortable temperature, maintains your decency and that is functional – accounting for all the wires and tubes you may be hooked up to – can be difficult.  From a mental health point of view you also want to look half decent for when you have people visiting and for your own self confidence.

Hospital gowns are often only available in limited sizes.  They also tend to not fasten well, accounting for tubes and wires by exposing parts of you that you would rather keep covered, especially when you are in a multi bedded bay!  To keep covered you are often given two, one to put on front wards and one to go on backwards – this can result in you getting very hot.  I often prefer wearing my own pyjamas and nighties but when you are hooked up to IVs they aren’t always suitable.  You end up not being able to remove the item of clothing, or can’t put it on properly.

INGA Wellbeing

“INGA Wellbeing has combined personal experience, expert medical advice and fashion design talent to create comfortable, attractive and functional patient clothing solutions that really work for ALL medical conditions and throughout patients’ treatment journeys.”

INGA have come up with a fantastic range of clothes for patients which addresses all these issues.  Features include

  • Discreet openings for IV lines, drains, monitors, examinations, treatments and massages

  • Full arm opening enables independent dressing and undressing (for many) even with IV lines

  • Interior pockets to hold drains, syringe drivers etc securely & discreetly

  • Exterior pockets

  • Soft, gently elasticated fabric.  Made from natural fibres, washable at 40 degrees C

  • Wrap design and/or poppers to adjust size

  • No metal parts so can be worn safely during MRIs etc

#tubieweek

So how does this fit in with #tubieweek?  Well, this issue is not just one for in patients.  Some people, such as my boyfriend Ste, have to have IV’s running at home too.  People who are tube and TPN fed also have difficulties with finding functional and comfortable clothing they can use when hooked up to their feeds/treatments.

INGA Wellbeing kindly sent over one of their men’s long sleeved tops for Ste to try out and he was eager to give it a go.  The package arrived quickly (they offer worldwide, free shipping) and it was nicely wrapped in tissue paper so would be perfect if sending to someone as a gift.  I was immediately impressed when I took it out of the packet.  It was so super soft and the  soft grey colour was really lovely.  They also have navy option and a dusky pink colour in the women’s clothes. There are different options for men and women and they include trousers, long and short sleeved tops and dresses.

Ste’s Thoughts

I think they are brilliant!  Comfortable, lightweight, easily accessible for all my tubes.  I spend a lot of time in pyjamas or lounge wear but it can be a pain to have my TPN or fluids running in them, so often end up not having a top on which then makes me cold and uncomfortable around others who can see all my tubes and bag on show.  I also use my jejunostomy tube to take a lot of my medications and with the INGA top I don’t have to undress to do this as it just hangs out the side.  I really want to get a pair of the trousers too as this would make daily life so much easier for me.

Visit the INGA Wellbeing store

INGA Wellbeing have kindly sent me a code so my lovely readers can receive 10% off their order – just use spooniemummy18 when checking out for your discount to be applied (this is an affiliate code so I may receive some commission from people using this. It doesn’t affect your purchase in anyway apart from saving you money but I need to make you aware)

I hope you enjoyed our review.  Me and Ste were both really impressed and will definitely be shopping with them again in the future.  I really like the idea that you can buy gift cards too.  It is often difficult to think of how to treat a person who is ill or in hospital, and this would be perfect for them to get something lovely, but useful too!

NatalieThe Spoonie Mummy

Other #tubieweek posts

What Is A Tubie?

Video – Changing the port and setting up a TPN feed

#tubieweek – What Is A Tubie?

Good morning and welcome to #tubieweek here on The Spoonie Mummy!  This week I will be posting blogs and videos (check out the YouTube channel for The Spoonie Mummy) all about tube feeding and TPN.

What Is Tube/TPN Feeding?

Crohns disease has wide ranging effects on the body – it is not just a ‘pooing’ disease.  One of these can be malnutrition due to a severer flare, leading to severe weight loss and the body lacking vital nutrients it needs. If the flare cannot be brought under control by medication, and treatments such as liquid diets and supplement shakes are not helping, a patient may need to be fed through other means.

Enteral feeding refers to the delivery of a nutritionally complete feed, directly into the stomach, duodenum or jejunum via a tube.  This can include:

  • a tube that’s passed down the nose and into the stomach – called a nasogastric tube (NG tube)
  • Nasojejunal feeding tube (NJtube) – similar to an NG-tube except that it is threaded through the stomach and into the jejunum (the middle section of the small intestine).
  • nasoduodenal or ND-tube may be placed into the duodenum, the first part of the small intestine
  • a tube that’s placed directly into the stomach (gastrostomy) or intestine (jejunostomy) through the skin of the tummy

Total Parenteral Nutrition (TPN) may also be considered.  This bypasses the digestive system completely and a solution containing nutrients is fed directly into the blood through a tube in a vein.  This will be delivered through a PICC line, a Hickman line or a port-a-cath.

Does This Mean A Patient Is Stuck In Hospital?

Not at all.  Although these kinds of treatments are set up in hospital, patients can be taught how to do their feeds at home when they are well enough.

I Have Crohns Disease – Should I Expect To Have to Go Through This?

I have been suffering from bowel problems for over twenty years but Crohns Disease wan’t officially diagnosed till I was 26 and I have never had to be tube or TPN fed.  It was considered before I had my surgery, but they soon realised surgery and a stoma was needed urgently!  Ste has had to be both fed enterally and with TPN due to his Crohns Disease and his Gastroparesis.

I carried out some polls on my Instagram stories last week to find out about other people’s experiences of tube feeding.

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Twelve percent of those who responded were also currently being fed via  a tube or TPN.  I also posted a question for everyone to answer to find out who had heard of tube and TPN feeding before and 88% of respondents had.

Is This A Long Term Treatment?

Tube and TPN feeding can be short or long term.  Sometimes patients need a boost while a flare is gotten under control.  Sometimes, it needs to be a long term option.

What Other Conditions Are Treated With This Type Of Feeding?

Conditions including (but not limited to) cancer, premature birth, metabolic disease, malnutrition, gastrointestinal problems, genetic syndromes and renal problems may result in patients requiring feeding tubes or TPN.

Emma has Ehlers Danlos Syndrome and shares her journey on her blog.  She recently wrote a post about life, one year into tube feeding which you can read here.

The Pros And Cons Of Enteral and TPN Feeding

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I hope you have enjoyed reading this brief introduction to the world of #tubies!  Please feel free to ask any questions in the comments below and me (or Ste) will endeavour to answer them as best we can.  Obviously this post does not contain all the information as there is so, so much but I hope it gives every one a little idea and sets us up ready for #tubieweek nicely.

NatalieThe Spoonie Mummy

Disclaimer – I am not a medical professional – my blog posts are based on my own experiences of my chronic illnesses, things I have learnt being with Ste and my own research.  Any major issues should be discussed with your own doctor and specialists