Tag: sick but invisible
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A Day In The Life – Starting A New Biologic Medication
Yesterday I started my new biologic medication. It is called Stelara (Ustekinimab) and we are hoping it will sort out my Arthritis flare and also keep my Crohns Disease under control. I have had to wait for a few weeks from my rheumatologist deciding this was the next step to take. First she had to…
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What Is Body Confidence?
I was in a relationship for years with a man who I believe may have narcissistic tendancies. A man who emotionally abused me. First, came the love bombing. The constant adoration, the you are so amazing and look, so am I taking you on expensive holidays and dates (which to be honest, are not really…
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Bucket List
My mental health has definitely taken a downward turn the last couple of weeks. I’ve been struggling with fatigue and insomnia (not the best combination), sore joints and lots of personal things. Recognising you are in a downward spiral can be helpful but it’s not necessarily as easy as that to start feeling better. I…
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Leo and Riley’s Sunday Night Takeover
Well, I told you Leo had some exciting news to share with you and here it is! Last year Leo and Riley completed a 10K walk in London for CCUK. I was so proud of them and the attitude they took to fundraising for a charity. Leo really wanted to do something this year and…
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Not Every Disability Is Visible
There has been a big push for these signs to be displayed on all disabled toilets recently but it sadly appears not everywhere has caught up and awareness, even amongst the disabled community is lacking. People with Crohns and Ulcerative Colitis often need to make multiple bathroom trips a day. They suffer severe diarrhoea episodes…
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So What Is A Spoonie?
“Is this woman making similarities between living with a chronic illness and hosting a fucking tea party?” Daniel Lee So yesterday when a good friend (and fellow Crohns patient) asked me this in his oh so Daniel Lee way, I realised not everyone will realise what a ‘spoonie’ is. Not even fellow spoonies it appears!…
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The Spoonie Mummy 