I wrote this post before Ste went into hospital, over a month ago, and had it sitting here for all this time. I feel like now is the time to share it. As anyone following my blog will know, Ste was admitted to hospital after we visited his amazing gastro doctor as he was rapidly… Continue reading BlogMas Day Fifteen – The Things You Can’t Say To Your Chronically Ill Partner
WHAT ILLNESSES DO YOU SUFFER WITH? I have rheumatoid arthritis, Crohns disease, an ileostomy, ostopenia, high blood pressure and iritis WHAT'S THE CRAZIEST 'CURE' SOMEONE HAS EVER OFFERED YOU? Well according to one GP I saw (yes a doctor), I shouldn't need a bone scan because I am too young to suffer from these issues!… Continue reading BlogMas Day Nine – Spoonie Christmas Challenge
On the 12th day of Christmas, chronic illness gave to me 12 breakfast tablets, 11 early nights, 10 pred rages, 9 fill your faces, 8 doctor visits, 7 bouts of brain fog, 6 non-alcoholic cocktails, 5 swollen joints, 4 heat pads, 3 bag leaks, 2 stool samples, and a blockage cuz I ate nuts!
I was in a relationship for years with a man who I believe may have narcissistic tendancies. A man who emotionally abused me. First, came the love bombing. The constant adoration, the you are so amazing and look, so am I taking you on expensive holidays and dates (which to be honest, are not really… Continue reading What Is Body Confidence?
So after doing the deed the other night I couldn't help but lay there giggling. Luckily, it wasn't a reflection on the sex which was, as always, very good, but I realised that between us me and Ste had 'on' two ostomy bags, a Peg-J tube and three heat pads. I see many people on… Continue reading Sex With An Ostomy (and numerous other health issues)
Arthritis is a painful condition that causes inflammation in the joints. Around ten million people are affected in the UK of all ages. Some people have a couple of joints affected and some people have it in multiple joints all over their body. I am one of those lucky souls that has it in pretty… Continue reading Arthritis In Your Hands – Tricks, Tips and Exercises
Good evening! Thought I would do a post to update you all on things that have been happening lately, rather than do lots of little posts about everything. My health has been pretty up and down but I'm still trying to keep a smile on my face as always. Firstly some of you would have… Continue reading An Update…
Low dose Methotrexate (25mg or less once a week) is used to treat a range of joint, skin and bowel conditions. This includes rheumatoid diseases, Crohn's disease and severe psoriasis. In higher doses it is used to treat cancer. I was put on Methotrexate when I was 14 years of age. I remember it being the first time… Continue reading Methotrexate
There has been a big push for these signs to be displayed on all disabled toilets recently but it sadly appears not everywhere has caught up and awareness, even amongst the disabled community is lacking. People with Crohns and Ulcerative Colitis often need to make multiple bathroom trips a day. They suffer severe diarrhoea episodes… Continue reading Not Every Disability Is Visible
"Is this woman making similarities between living with a chronic illness and hosting a fucking tea party?" Daniel Lee So yesterday when a good friend (and fellow Crohns patient) asked me this in his oh so Daniel Lee way, I realised not everyone will realise what a 'spoonie' is. Not even fellow spoonies it appears!… Continue reading So What Is A Spoonie?