Tag: crohns
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An Interview With Ali Jawad
If you watch The IBD & Ostomy Support Show you will know our August theme has been exercising with IBD or an ostomy. This can be difficult for many reasons – fatigue, risk of hernia, malabsorption, deficiencies and many more. There are many amazing people across the IBD community who are actively taking part and…
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Getting Ste’s ‘Tea’ Ready
Good evening, this is a bit of a late one but have finally had the last day of school today and we are officially on Summer break! Yay! Some of you may know my boyfriend Ste, know that he also has Crohns Disease and know that he has jejunostomy feeding tube (PEG-J), for some this…
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Bag Leaks
The past month has seen me suffer from about six full blown bag leaks. By full blown I mean that I haven’t noticed it start slowly and output has leaked onto my clothing, and at night onto bedding too. Since starting to use the Salts bags about eight months ago I haven’t had any. I…
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Dressing With An Ostomy – My Story With Clothes Since Surgery
WithI found out I was having surgery and an ileostomy the day before it happened, It all happened pretty quickly but as I had been a member of a few IBD support groups for about 8 months by then, I felt a little calmer and more assured after seeing so many amazing people still living…
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It’s Not A Competition And We Can Wear White!
This is something I wrote yesterday on my Facebook page after seeing this post and the responses. I’m not sure whether this post was written in a celebratory manner or not but there were lots of derogatory comments about Sam Faiers and ‘how ill’ she is. Now I don’t agree with all she has said…
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Methotrexate
Low dose Methotrexate (25mg or less once a week) is used to treat a range of joint, skin and bowel conditions. This includes rheumatoid diseases, Crohn’s disease and severe psoriasis. In higher doses it is used to treat cancer. I was put on Methotrexate when I was 14 years of age. I remember it being the first time…
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Why Online Support Groups Can Be So Helpful
I joined my first IBD online support group in September 2015. I had been struggling for a while with my mental health and had just made the big step of opening up to my rheumatology nurse about how I was feeling. I had been diagnosed with Crohns Disease almost three years previously but still didn’t…
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My Stoma Bag Changing Routine
Tonight I thought I would share my stoma bag changing routine with you! I change my bag every evening after my shower. Some people choose to leave their bag on longer and change once every 3 to 4 days. It’s personal preference and what you skin can cope with as this varies from person to…
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The Spoonie Mummy 