It has been a little while since I did an interview piece as I have been so busy but today I get you introduce you to a good friend of mine, Rich. I asked Rich if I could interview him about life as a parent of a child with a chronic condition. Rich’s oldest child, Josh, is nine years old and has a genetic condition (he explains better than I can later on). Josh has had to spend quite a bit of time in hospital and I was interested on the impact this can have on their family, as well as seeing what kind of support there is out there for families in this situation and how the doctor’s treat Josh and whether they allow him to advocate for himself in as many decisions as is appropriate and possible.
1 – Could you tell us a bit about yourself, and your family? My names Rich, I’m 34, live in Derbyshire. Been with my partner Amy for 16 years and have 2 children Josh who’s 9, Ellie who’s 6 going on 16!
Category: Blog Posts, Health, ParentingTags: access to support, advice, bullying, defective gene, doctors, emotional support, family life, genetic conditions, interview, mitochondrial depletion of the POLG1 gene, parent of a child with chronic illness, rich clarke, school life, support, Tpn
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