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The Spoonie Mummy

Living a happy and meaningful life with chronic illness

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Category: Lifestyle

#relationshipgoals

By thespooniemummy on February 26, 2017 • ( Leave a comment )

Practising for old age at visiting time yesterday! My wonderful man has been to visit this weekend, spending most of his time in my empty house so he could come and see me during visiting hours at the hospital. Not only that but he has been doing washing […]

An Introduction

By thespooniemummy on February 21, 2017 • ( Leave a comment )

I wrote my first blog post almost 10 months ago, just after turning 30 and going through what was probably the toughest 8 months of my life. I then kept it to myself as I thought no one would want to read it! Fast forward to the present […]

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#throwbackthursday #tbt Me and @emchap85 doing the girlie thing! "Best friends are like stars. You don't always see them but you know they are always there"

• PEANUT BUTTER & BANANA PANCAKES • Me and the boys love pancakes, it's one of our favourite weekend breakfast treats. On Saturday I made me and Leo these peanut butter and banana pancakes for something a little bit different and I was super pleased with how they turned out! I've posted the recipe on the blog this morning, the link is in my bio as always! What's your favourite kind of breakfast?

Tomorrow I will be donning my hospital gown once again, but this time it's not me being tested!!! I've been asked to attend the hospital as part of the student doctor exams. I'm quite excited to see what happens and see how the new doctors perform. I can't say too much today but am going to try and film as much as I can tomorrow for a YouTube Day In The Life kinda video! Wish me luck (but them more!) I think I will be a bit heartbroken for them if they get it wrong!

Me and Ste both love cooking. He is currently TPN fed and can't eat alot due to his Gastroparesis. I often wonder why he loves watching cookery shows and doing the cooking. I asked him yesterday about it and said it felt like torture to me. He said it is, but be also enjoys cooking and creating recipes for us to enjoy and it actually helps him feel better. This was the homemade soup he made with Sundays roast leftovers and it was the tastiest soul I've ever had! So glad I have some more for today! Chronic Illnesses' definitely teach you to be grateful for the little things like being able to get a shower or get dressed each day. Ste has taught me to be grateful for the simple ability to eat. What are three things you are grateful for today?

• SORE PERISTOMAL SKIN • I am pretty lucky with my skin, as long as I change my bag regularly it doesn't cause me many problems. However, occasionally after a leak or maybe cutting my bag hole a little too big, I can get a sore patch next to my stoma. Tonight's soreness is due to cutting my bag a little too big, leaving a patch of the skin surrounding my stoma open to the acidic output. I thought I'd share my routine for helping heal this quickly, as it may help some of you struggling with soreness. 1) After taking off my old bag I clean the skin really well and dry it with the complimentary wet and dry wipes I get from @bullenhealthcare who are my delivery company 2) Next I spray the barrier spray I use at every bag change, @convatecstomauk Silesse and allow to dry 3) Now onto the extra steps I take for soreness. I use an @saltshealthcare foam applicator wiped directly over the sore area 4) I then sprinkle on some of the @coloplast Brava Ostomy Powder and use a dry wipe to pat it over the sore area and remove any excess. This is especially helpful for when the skin is weeping as it helps keep the area dry to help your new bag adhere properly 5) I put the new bag on and ensure it is well stuck down I hope this is useful to some! There are lots of different products out there but these are what I've found helped the most for me. If you have a different way of coping with sore skin why not pop it in the comments so we can build up a list of ways other ostomates can try to see what suits them

•Happy Father's Day • To all the dad's out there doing a fab job, I hope you have a lovely day and feel appreciated. Me and my Dad might not share any DNA but we share alot more - happy memories. Thankyou for years of laughs and love, of sardines and submarines, mongy face with pizza in it and ice cream on the way home. And so to my gorgeous man Ste, who has helped me navigate a new life since August 2017. Who sits by my side and feeds me on our long journeys. Who helped teach my babies how to ride their bikes stabiliser free this year. Who is better at helping them with jigsaws than me and loves Lego as much as they do. Who fought for his baby girl and his right to parent, regardless of a disability. Who has taught me that although they will always be my babies, they can also do alot fir themselves! Who is just as wanted for snuggles after a bad dream. Thankyou for loving my babies as much as I do (well, almost obviously ha ha). You are our superhero xxx

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