I have rheumatoid arthritis, Crohns disease, an ileostomy, ostopenia, high blood pressure and iritis
Well according to one GP I saw (yes a doctor), I shouldn’t need a bone scan because I am too young to suffer from these issues!
That young people can be disabled too, and you don’t need to see a disability. You never know what is going on inside a person’s body and under their clothes. Stop judging!
My guilty pleasure is watching the Teen Mom OG and Teen Mom 2 shows. I have followed since the beginning and I love to see what they are up to, even though some of them are really irritating!
I love flavoured water, milkshakes and cups of tea! Ohh and some cherry Pepsi!
Pain is temporary, quitting lasts forever
Heat pads and hot water bottle, lots of pillows to try and prop up different areas to get comfy, pain meds, Netflix, sleep, ibruprofen gel, splints and supports
Methotrexate, Stelara, , Prednisilone, Tramadol. Paracetamol or Solpadeine, Ondansatron, Prochlorperazine, Folic Acid, Calcium and Vitamin D Supplement, Oramorph, Ramipril, Citalopram, Omeprazole plus two sets of eye drops (one steroid and one to reduce pressure). Some of these are regular and some are as needed
I could always use more energy
The fatigue definitely. It makes everything harder to deal with, brain fog is intensified, I feel trapped by it at times and can’t do anything I want to
Knox, 8.5 month old staffie dog
Ste, my boyfriend. The boys and Layla give me something to keep going and fighting for. My family are amazing, my mum has been there forever and my Dad has been brilliant, especially with my mental health struggles
I unfortunately don’t think I have one! Would have to be very young as I was diagnosed with arthritis at the age of fifteen months
You can’t take care of others unless you are taking care of yourself first. It isn’t selfish to put your ifrst, when you are poorly it needs to be the case
I have got some really great doctors at the Royal Derby in Rheumatology, Gastro, Orthopaedics and Surgery. Will never forget Dr Axton and Dr Williams who I had as a child though, they were fantastic and definitely helped me with my fighting spirit and positivity
Mash potato and gravy
Rich, Italian, tomato sauces can give me real problems but I love bolognaise and meatballs!
Now I nominate Stephie (Colitis To Ostomy), Rachel (Rocking2Stomas), Louise (Crohns Fighting), Surak (Guts, Giggles and More) and Lucy (A Thyroid Damsel) to take the Spoonie Christmas Challenge!
Mash potato & gravy, think that’d be my safe food too! I like to think my stoma is happy with it, and that there’s some calcium in there somewhere for my bones (also have osteopenia like you). Thanks for sharing, it’s interesting to get to ‘know’ you a little better 🙂
You should do it too! Mash and gravy is one of my favourite things in the world, just lucky it’s safe too! And yeah as there is milk and butter in the mash, definitely healthy! Xxx
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