BlogMas Day Nine – Spoonie Christmas Challenge

WHAT ILLNESSES DO YOU SUFFER WITH?

I have rheumatoid arthritis, Crohns disease, an ileostomy, ostopenia, high blood pressure and iritis

WHAT’S THE CRAZIEST ‘CURE’ SOMEONE HAS EVER OFFERED YOU?

Well according to one GP I saw (yes a doctor), I shouldn’t need a bone scan because I am too young to suffer from these issues!

DISABILITIES – WHAT DO YOU WANT PEOPLE TO KNOW?

That young people can be disabled too, and you don’t need to see a disability.  You never know what is going on inside a person’s body and under their clothes.  Stop judging!

FAVOURITE GUILTY PLEASURE?

My guilty pleasure is watching the Teen Mom OG and Teen Mom 2 shows.  I have followed since the beginning and I love to see what they are up to, even though some of them are really irritating!

FAVOURITE HYDRATION?

I love flavoured water, milkshakes and cups of tea!  Ohh and some cherry Pepsi!

FAVOURITE INSPIRATIONAL QUOTE?

Pain is temporary, quitting lasts forever

FLARE ESSENTIALS?

Heat pads and hot water bottle, lots of pillows to try and prop up different areas to get comfy, pain meds, Netflix, sleep, ibruprofen gel, splints and supports

MEDICATION?

Methotrexate, Stelara, , Prednisilone, Tramadol. Paracetamol or Solpadeine, Ondansatron, Prochlorperazine, Folic Acid, Calcium and Vitamin D Supplement, Oramorph, Ramipril, Citalopram, Omeprazole plus two sets of eye drops (one steroid and one to reduce pressure).  Some of these are regular and some are as needed

WHAT DO YOU NEED JUST A SPOONFUL OF? LOVE, HOPE, UNDERSTANDING?

I could always use more energy

IF YOU COULD GET RID OF A SYMPTOM WHAT WOULD IT BE?

The fatigue definitely.  It makes everything harder to deal with, brain fog is intensified, I feel trapped by it at times and can’t do anything I want to

PETS OR SERVICE DOG?

Knox, 8.5 month old staffie dog

HOSPITAL SELFIE

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SUPPORT SYSTEM?

Ste, my boyfriend.  The boys and Layla give me something to keep going and fighting for.  My family are amazing, my mum has been there forever and my Dad has been brilliant, especially with my mental health struggles

THROWBACK OF HEALTHIER DAYS

I unfortunately don’t think I have one!  Would have to be very young as I was diagnosed with arthritis at the age of fifteen months

MOST HELPFUL ADVICE?

You can’t take care of others unless you are taking care of yourself first.  It isn’t selfish to put your ifrst, when you are poorly it needs to be the case

SHOUT OUT TO YOUR DOCTOR!

I have got some really great doctors at the Royal Derby in Rheumatology, Gastro, Orthopaedics and Surgery.  Will never forget Dr Axton and Dr Williams who I had as a child though, they were fantastic and definitely helped me with my fighting spirit and positivity

FAVOURITE ‘SAFE’ FOOD

Mash potato and gravy

FAVOURITE ‘NOT SAFE’ FOOD

Rich, Italian, tomato sauces can give me real problems but I love bolognaise and meatballs!

Now I nominate Stephie (Colitis To Ostomy), Rachel (Rocking2Stomas), Louise (Crohns Fighting), Surak (Guts, Giggles and More) and Lucy (A Thyroid Damsel) to take the Spoonie Christmas Challenge!

 

3 Comments

  1. Mash potato & gravy, think that’d be my safe food too! I like to think my stoma is happy with it, and that there’s some calcium in there somewhere for my bones (also have osteopenia like you). Thanks for sharing, it’s interesting to get to ‘know’ you a little better 🙂

    Like

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